Affiliation:
1. Oxford Health NHS Foundation Trust Oxford Brookes University Oxford UK
2. Oxford Institute of Nursing Midwifery and Allied Health Research Oxford Brookes University Oxford UK
3. University of Sydney Sydney New South Wales Australia
4. Oxford Brookes University Oxford UK
Abstract
AbstractAimTo systematically review and synthesize primary research on experiences and needs of adult informal caregivers of adults at risk of suicide.DesignSystematic review with a data‐based convergent synthesis.Data SourcesMEDLINE, PsychINFO and CINAHL were searched in April 2022 and February 2023. English language research focusing on experiences of adult carers of adults was included.MethodsArticles were screened by title (n = 9077) and abstract (n = 132) with additional articles (n = 6) obtained via citation and hand searching. Thirty‐one included studies were quality assessed using the Mixed Methods Appraisal Tool and study data were systematically extracted prior to thematic synthesis.ResultsFive interconnected themes resulted: transitions; living with fear and uncertainty; changing relationships; interface with healthcare professionals and services; what carers need and want. Caring impacts mental, physical and social wellbeing. Relationships are affected in ways which might not be evident when caring for a minor. Repeated suicidal behaviour is particularly challenging with ongoing hypervigilance contributing to burden, burnout and interpersonal strain. Poor carer support exacerbates negative effects; carers need to feel informed, educated, involved and holistically supported.ConclusionTimely support for carers is essential. Interventions should address emotional responses, relational changes and effective care recipient support. Longitudinal research is required to understand effects of ongoing caring where there are multiple suicide attempts.ImplicationsNurses can provide carers with early support and information and longer term psychosocial interventions. If carers are adequately equipped and supported patient safety and wellbeing will be improved.ImpactFindings of this systematic review include relational changes due to carer hypervigilance reducing autonomy and living with the possibility of suicide. Clinician awareness of the potential for relational shifts will help them prepare and support carers.Patient or Public ContributionThere was no patient or public contribution.
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