Advocating the rights of people with dementia to contribute to research: Considerations for researchers and ethics committees

Author:

O’Connor Claire M. C.12ORCID,Liddle Jacki3ORCID,O’Reilly Maria4,Meyer Claudia56ORCID,Cartwright Jade7,Chisholm Marita8,Conway Erin9,Fielding Elaine10,Fox Amanda10,MacAndrew Margaret10ORCID,Schnitker Linda11ORCID,Travers Catherine310,Watson Karen12,While Christine13,Bail Kasia14ORCID

Affiliation:

1. HammondCare Centre for Positive Ageing Sydney New South Wales Australia

2. School of Population Health University of New South Wales Sydney New South Wales Australia

3. The University of Queensland Brisbane Queensland Australia

4. Central Queensland University Bundaberg Queensland Australia

5. Bolton Clarke Research Institute Melbourne Victoria Australia

6. Rehabilitation, Ageing and Independent Living Research Centre Monash University Melbourne Victoria Australia

7. Curtin University Perth Western Australia Australia

8. Rural North West Health Warracknabeal Victoria Australia

9. Faculty of Health Sciences Australian Catholic University Brisbane Queensland Australia

10. Queensland University of Technology Brisbane Queensland Australia

11. Bolton Clarke Research Institute Brisbane Queensland Australia

12. The University of Sydney Sydney New South Wales Australia

13. Dementia Training Australia La Trobe University Melbourne Victoria Australia

14. Faculty of Health University of Canberra Canberra Australian Capital Territory Australia

Publisher

Wiley

Subject

Geriatrics and Gerontology,Community and Home Care,General Medicine

Reference20 articles.

1. Multiple perspectives on quality of life for residents with dementia in long term care facilities: protocol for a comprehensive Australian study

2. Victorian Legislation.Guardianship and Administration Act 1986.1986.https://www.legislation.vic.gov.au/repealed‐revoked/acts/guardianship‐and‐administration‐act‐1986/089. Accessed March 02 2021.

3. Government of South Australia.Advance Care Directives Act 2013.2017.https://www.legislation.sa.gov.au/lz/c/a/advance%20care%20directives%20act%202013.aspx. Accessed March 02 2021.

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