The impact of a haemophilia education intervention on the knowledge and health related quality of life of parents of Indian children with haemophilia-Reference-Cited by-同舟云学术

The impact of a haemophilia education intervention on the knowledge and health related quality of life of parents of Indian children with haemophilia

Published:2016-09-19 Issue:1 Volume:23 Page:82-88
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Phadnis S.¹,Kar A.¹

Affiliation:

1. School of Health Sciences; Savitribai Phule Pune University; Pune India

Funder

Savitribai Phule Pune University Departmental Research Development Programme

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.13070/fullpdf

Reference29 articles.

1. Quality of life in children and families with bleeding disorders;Bullinger;J Pediatr Hematol Oncol,2003

2. Parents of children with haemophilia: a transforming experience;Beeton;Haemophilia,2007

3. Psychosocial aspects of life with haemophilia, Literature review, prepared for Novo Nordisk as part of the HERO initiative, 2010 http://www.herostudy.org/content/dam/hero-study/AFFILIATE/www-herostudy-com/Media-Publication/Documents/hero-lit-review-feb-2010.pdf

4. Ross J Perspectives of Hemophilia Carriers. Montreal 2004: World Federation of Hemophilia Revised edn http://www.wfh.org/2/docs/Publications/Genetic_counsel/TOH-8_English_Carriers.pdf

5. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings;Casis;Haemophilia,2012

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