Reliable assessment of pain behaviour in adults with profound intellectual and multiple disabilities: The development of an instruction protocol-Reference-Cited by-同舟云学术

Reliable assessment of pain behaviour in adults with profound intellectual and multiple disabilities: The development of an instruction protocol

Published:2023-03-13 Issue:3 Volume:36 Page:653-663
ISSN:1360-2322
Container-title:Journal of Applied Research in Intellectual Disabilities
language:en
Short-container-title:Research Intellect Disabil

Author:

Enninga Annemieke¹^ORCID,Waninge Aly²^ORCID,Post Wendy J.¹^ORCID,van der Putten Annette A. J.¹^ORCID

Affiliation:

1. Department of Inclusive and Special Needs Education University of Groningen Groningen The Netherlands

2. Research Group Healthy Ageing, Allied Health Care and Nursing Hanze University of Applied Sciences Groningen The Netherlands

Abstract

AbstractBackgroundPersons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain‐related behaviour in these persons is difficult. Aim To determine how pain items can be reliably scored in adults with PIMD.MethodsWe developed an instruction protocol for the assessment of pain‐related behaviour in four phases. We used videos of 57 adults with PIMD during potentially painful situations. The items were assessed for inter‐rater reliability (Cohen's kappa or percentage of agreement).ResultsThe developed instruction protocol appeared to be adequate. Twelve items had satisfactory inter‐rater reliability (n = 9: .30–1.00; n = 3: 85%–100%).DiscussionCalibrating and adjustments to the instructions and item set appeared to be crucial to reliably score 12 items in adults with PIMD. Further research should focus on creating an assessment instrument based on these reliably scored items.

Funder

ZonMw

Publisher

Wiley

Subject

Developmental and Educational Psychology,Education

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jar.13089

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