Environment‐based approaches to improve participation of young people with physical disabilities during COVID‐19

Author:

Anaby Dana R.1ORCID,Avery Lisa23,Palisano Robert J.4ORCID,Levin Mindy F.1,Khayargoli Pranamika1,Hsieh Yu‐Hsin1,Gorter Jan Willem56ORCID,Teplicky Rachel5,

Affiliation:

1. School of Physical and Occupational Therapy, Faculty of Medicine and Health Sciences McGill University Montreal Quebec Canada

2. Dalla Lana School of Public Health University of Toronto Toronto Ontario Canada

3. Avery Information Services Ltd. Ontario Canada

4. Department of Physical Therapy and Rehabilitation Science Drexel University Philadelphia USA

5. CanChild Centre for Childhood Disability Research Hamilton Ontario Canada

6. Department of Rehabilitation, Physical Therapy Science and Sports University Medical Center Utrecht Utrecht the Netherlands

Abstract

AbstractAimTo examine the effects of the Pathways and Resources for Engagement and Participation (PREP) intervention during the COVID‐19 pandemic on (1) activity performance and satisfaction, and (2) motor, cognitive, and affective body functions.MethodAn interrupted time‐series design with multiple baselines across 21 young people (13 females, eight males) aged 16 to 25 years (median = 21 years 5 months) with physical disabilities was employed. The young people engaged in an 8‐week self‐chosen leisure activity (e.g. football, piano, photography) at their home or community. The Canadian Occupational Performance Measure (COPM) assessed activity performance and satisfaction weekly. Mental health problems, including affective and cognitive outcomes, were assessed weekly using the Behavior Assessment System for Children, Third Edition. Motor functions (e.g. trunk control, reaching, strength) were assessed biweekly. Linear mixed‐effects models were used.ResultsThe intervention had large effects on activity performance (0.78) and satisfaction (0.88) with clinically significant change in COPM scores (2.6 [95% confidence interval {CI}: 2.0–3.2] and 3.2 points [95% CI: 2.4–3.9] respectively). Young people without mental health problems at baseline benefited more from the intervention (p = 0.028). Improvements in at least one domain of body function occurred in 10 young people especially for motor outcomes.InterpretationResults demonstrate the effectiveness of PREP during adverse times and suggest benefits going beyond participation, involving outcomes at the body‐function level.

Funder

Institute of Human Development, Child and Youth Health

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

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