Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities

Author:

Greene Alison1,Baugh Mika1,Sherwood‐Laughlin Catherine1,Greathouse Lisa2,Galyan Jordyn1,Simić Stanojević Ivanka1,Sangmo Dechen1,Jozkowski Kristen1,Dubie Melissa3,Chow Angela1

Affiliation:

1. School of Public Health‐Bloomington Indiana University Bloomington Indiana USA

2. Coordinated School Health Indiana University Health Bloomington Indiana USA

3. Indiana Resource Center for Autism Indiana Institute on Disability and Community Bloomington Indiana USA

Abstract

AbstractBackgroundTailored sexuality education for adolescents with intellectual and developmental disabilities is a crucial, yet unmet, need as this population is particularly at risk for sexual abuse and victimisation. However, there are no evidence‐based interventions to specifically address this need. This paper presents the development of an intervention framework to address equity in sexuality education and support adolescents with intellectual and developmental disabilities to understand and provide sexual consent, a foundational aspect of sexuality education and sexual health.MethodsThe Sexual Health Equity Project team used a Community‐Based Participatory Research approach to develop a four‐module sexual consent intervention for adolescents with intellectual and developmental disabilities. We leveraged a diverse, interdisciplinary team in a suburban Midwestern school district, and used Backward Design to create objectives and assessments which were rooted in findings from qualitative data by special education teachers.ResultsThe resulting sexual consent intervention, Ask Me First—Choices, is comprised of four modules covering topics including definition of sexual consent; decision‐making strategies and practice; communicating consent and refusal, identifying situations of consent and non‐consent; and legal issues surrounding consent. Each module is divided into five components for content delivery: (1) introduction, (2) lecture, (3) supplemental activity, (4) assessment, and (5) conclusion. We detail the intervention's unique aspects, emphasising areas where we used Universal Design for Learning principles to support teachers' instruction and students' learning.ConclusionOur efforts to create a sexual consent intervention directly address sexuality education equity issues. We offer commentary on our design process and decisions, as well as recommendations for future groups who want to develop sexual health interventions in similar contexts for students with intellectual and developmental disabilities. Next steps include further testing and validation of the sexual consent intervention to build the evidence‐base of sexuality education for adolescents with intellectual and developmental disabilities.

Funder

National Center for Advancing Translational Sciences

Publisher

Wiley

Reference34 articles.

1. Alford S.(2009).Sex education programs: Definitions & point‐by‐point comparison. Advocates for Youth.https://www.advocatesforyouth.org/resources/fact-sheets/sex-education-programs-definitions-and-point-by-point-comparison/

2. Improving service quality in special education institutions: Servqual scale;Behdioğlu S.;Global Business & Management Research,2014

3. CAST. (2018).UDL: Research Evidence.https://udlguidelines.cast.org/more/research-evidence

4. Centers for Disease Control and Prevention. (2023).What works: Sexual health education.https://www.cdc.gov/healthyyouth/whatworks/what‐works‐sexual‐health‐education.htm#:~:text=What%20is%20sexual%20health%20education

5. Enhancing capacity to make sexuality-related decisions in people with an intellectual disability

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