Engaging With Health Consumers in Scientific Conferences—As Partners not Bystanders

Author:

Newman Bronwyn1ORCID,Bowden Janelle2ORCID,Jessup Rebecca34,Christie Lauren J.567,Livingstone Ann8,Sarkies Mitchell910,Killedar Anagha11,Vleeskens Carole121314,Sarwar Mashreka112,Tieu Thit112,Chamberlain Saran15ORCID,Harrison Reema1,Pearce Alison16

Affiliation:

1. Australian Institute of Health Innovation Macquarie University Sydney New South Wales Australia

2. AccessCR Pty Ltd Sydney New South Wales Australia

3. Staying Well Programs Northern Health Melbourne Victoria Australia

4. School of Allied Health, Human Services and Sport La Trobe University Bundoora Victoria Australia

5. Allied Health Research Unit St Vincent's Health Network Sydney Darlinghurst New South Wales Australia

6. Faculty of Health Sciences Australian Catholic University North Sydney New South Wales Australia

7. St Vincent's Health Network Sydney Nursing Research Institute, St Vincent's Hospital Melbourne and Australian Catholic University Fitzroy Victoria Australia

8. Deakin Health Economics, School of Health and Social Development, Institute for Health Transformation, Faculty of Health Deakin University Geelong Victoria Australia

9. Sydney School of Health Sciences, Faculty of Medicine & Health University of Sydney Camperdown New South Wales Australia

10. Sydney Health Partners, Implementation Science Academy University of Sydney Camperdown New South Wales Australia

11. Menzies Centre for Health Policy and Economics, School of Public Health, Faculty of Medicine and Health The University of Sydney Sydney New South Wales Australia

12. Consumer Presenter, HSRAANZ Conference

13. Consumer Research Partner, Consumer PCC Initiative (Channelling Consumer Voices To Transform Person‐Centred Care)

14. SPHERE Musculoskeletal Clinical Academic Group Consumer Community Council Sydney New South Wales Australia

15. UniSA Allied Health & Human Performance University of South Australia Adelaide South Australia Australia

16. School of Public Health The University of Sydney Sydney New South Wales Australia

Abstract

ABSTRACTIntroductionIt is now widely recognised that engaging consumers in research activities can enhance the quality, equity and relevance of the research. Much of the commentary about consumer engagement in research focuses on research processes and implementation, rather than dissemination in conference settings. This article offers reflections and learnings from consumers, researchers and conference organisers on the 12th Health Services Research Conference, a biennial conference hosted by the Health Services Research Association of Australia and New Zealand (HSRAANZ).MethodWe were awarded funds via a competitive application process by Bellberry Limited, a national not‐for‐profit agency with a focus on improving research quality, to incorporate consumer engagement strategies in conference processes and evaluate their impact.FindingsStrategies included consumer scholarships, a buddy system, designated quiet space and consumer session co‐chairs; the reflections explored in this paper were collected in the funded, independent evaluation. Our insights suggest a need for more structured consumer involvement in conference planning and design, as well as the development of specific engagement strategies.ConclusionTo move toward active partnership in scientific conference settings, our experience reinforces the need to engage consumers as members in designing and conducting research and in presenting research and planning conference content and processes.Public ContributionConsumer engagement in research dissemination at conferences is the focus of this viewpoint article. Consumers were involved in the conception of this article and have contributed to authorship at all stages of revisions and edits.

Publisher

Wiley

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