Prospects for research in haemophilia with real-world data-An analysis of German registry and secondary data

Author:

Schopohl D.1ORCID,Bidlingmaier C.2,Herzig D.3,Klamroth R.4,Kurnik K.2,Rublee D.5,Schramm W.6,Schwarzkopf L.7,Berger K.1

Affiliation:

1. Department of Medicine III; University Hospital; LMU Munich; Munich Germany

2. Department of Pediatrics; Dr. von Hauner Children's Hospital; University Hospital; LMU Munich; Munich Germany

3. AOK Nordwest; Kiel Germany

4. Department of Angiology and Haemostaseology; Vivantes Clinic; Berlin Germany

5. Independent Health Services Research; Munich Germany

6. Rudolf-Marx-Foundation; LMU Munich; Munich Germany

7. Helmholtz Zentrum Munich; German Research Center for Environmental Health (GmbH); Neuherberg Germany

Funder

Ludwig-Maximilians-Universität München

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference33 articles.

1. 2017 Clinical trials update: innovations in hemophilia therapy;Hartmann;Am J Hematol,2016

2. How real-world data compensate for scarce evidence in HTA;George;Z Evid Fortbild Qual Gesundh wesen (ZEFQ),2016

3. Using real-world data for coverage and payment decisions: the ISPOR Real-World Data Task Force report;Garrison;Value Health,2007

4. IQWiG Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen IQWiG-Berichte - Nr. 305 Therapie von Hämophilie-Patienten Rapid Report Version: 1.0 Stand: 28.05.2015 Rapid Report A13-07 https://www.iqwig.de/download/A13-07_Rapid-Report_Therapie-von-Haemophilie-Patienten.pdf

5. IQWiG Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen Berichte des Instituts https://www.iqwig.de/de/projekte-ergebnisse/publikationen/iqwig-berichte.1071.html

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