Goal Attainment Scaling for haemophilia (GAS-Hēm): testing the feasibility of a new patient-centric outcome measure in people with haemophilia

Author:

Roberts J. C.1ORCID,Lattimore S.2,Recht M.2,Jackson S.3,Gue D.3,Squire S.3,Robinson K. S.4,Price V.5,Denne M.6,Richardson S.6,Rockwood K.47

Affiliation:

1. Bleeding & Clotting Disorders Institute; Peoria IL USA

2. The Hemophilia Center at Oregon Health & Science University; Portland OR USA

3. Division of Hematology; University of British Columbia; Vancouver BC Canada

4. Dalhousie University; Halifax NS Canada

5. IWK Health Center; Halifax NS Canada

6. Shire; US Medical Affairs; Chicago IL USA

7. DGI Clinical Inc.; Halifax NS Canada

Funder

Shire

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Reference29 articles.

1. Advances in hemophilia and the role of current and emerging prophylaxis;Acharya;Am J Manag Care,2016

2. Prophylaxis for Hemophilia in the Era of Extended Half-Life Factor VIII/Factor IX Products;Berntorp;Semin Thromb Hemost,2016

3. Benefits of prophylaxis versus on-demand treatment in adolescents and adults with severe haemophilia A: the POTTER study;Tagliaferri;Thromb Haemost,2015

4. Challenges of patient-reported outcome assessment in hemophilia care-a state of the art review;Bullinger;Value Health,2009

5. Outcome assessment and limitations;Poonnoose;Haemophilia,2012

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