Affiliation:
1. Dermatology South Infirmary Victoria University Hospital Cork Ireland
2. University College Cork Cork Ireland
3. INFANT Research Centre University College Cork Cork Ireland
Abstract
AbstractThe burden of treatment (BOT) related to propranolol treatment for infantile hemangiomas (IH) has never previously been explored. A modified validated questionnaire, the Treatment Burden Questionnaire, and one‐on‐one semi‐structured interviews were used to assess the BOT for propranolol for IH. Out of 80 caregivers, the overall burden score was very low at 1.2 out of 10; thematic analysis of interviews grouped themes into administration, monitoring, financial, and associated anomalies. The BOT of propranolol for IH is very low but could be reduced further by offering age‐based risk stratification related to feeding frequency and risk of hypoglycemia, pragmatic advice around timing of doses before sleep, and reducing frequency of vital sign monitoring.
Funder
Wellcome Trust
Health Research Board
Health and Social Care Northern Ireland