Behavioural interventions to treat anxiety in adults with autism and moderate to severe intellectual disabilities: The BEAMSID feasibility study

Author:

Langdon Peter E.123ORCID,Apanasionok Magdalena M.1ORCID,Scripps Emma1ORCID,Barrowcliff Alastair4,Biswas Asit5,Bunning Karen6ORCID,Burbidge Cheryl2,Byron‐Daniel Katherine3,Cookson Alex4,Croom Sarah12ORCID,Filipczuk Malwina1,Gillespie David7,Hastings Richard P.1ORCID,Jahoda Andrew8ORCID,McNamara Rachel7ORCID,Patterson Lawrence9,Rai Dheeraj1011ORCID,Steward Robyn1,Gray Kylie M.1ORCID

Affiliation:

1. Centre for Research in Intellectual and Developmental Disabilities (CIDD) University of Warwick Coventry UK

2. Coventry and Warwickshire Partnership NHS Trust Coventry UK

3. Herefordshire and Worcestershire Health and Care NHS Trust Worcester UK

4. Mersey Care NHS Foundation Trust Prescot UK

5. Leicestershire Partnership NHS Trust Leicester UK

6. School of Health Sciences University of East Anglia Norwich UK

7. Centre for Trials Research, College of Biomedical and Life Sciences Cardiff University Cardiff UK

8. Psychological Medicine University of Glasgow Glasgow UK

9. Solent NHS Trust Southampton UK

10. Centre for Academic Mental Health, Population Health Sciences Bristol Medical School Bristol UK

11. NIHR Bristol Biomedical Research Centre Bristol UK

Abstract

AbstractBackgroundThe aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities.MethodTwenty‐eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single‐group non‐randomised feasibility study designed to test intervention feasibility and acceptability, outcome measures, and research processes.ResultsThe intervention was judged as feasible and acceptable by autistic adults with intellectual disabilities, carers, and therapists. Minor intervention revisions were suggested. Carers completed 100% of outcome measures and the missing data rate was low. Complying with legislation governing the inclusion of participants who lack capacity to decide whether they wanted to take part in this study led to an average 5‐week enrolment delay.ConclusionThe intervention and associated study processes were judged to be feasible and acceptable and should now be tested within a larger randomised trial.

Funder

National Institute for Health and Care Research

Publisher

Wiley

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