Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience-Reference-Cited by-同舟云学术

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience

Published:2017-06 Issue:2 Volume:95 Page:291-318
ISSN:0887-378X
Container-title:The Milbank Quarterly
language:en
Short-container-title:The Milbank Quarterly

Author:

GOLLUST SARAH E.¹,GRAY STACY W.²,CARERE DEANNA ALEXIS³,KOENIG BARBARA A.⁴,LEHMANN LISA SOLEYMANI⁵,McGUIRE AMY L.⁶,SHARP RICHARD R.⁷,SPECTOR-BAGDADY KAYTE⁸,WANG NA⁹,GREEN ROBERT C.⁵,ROBERTS J. SCOTT¹⁰,

Affiliation:

1. University of Minnesota School of Public Health

2. City of Hope Comprehensive Cancer Center; Beckman Research Institute

3. McMaster University

4. University of California; San Francisco

5. Brigham and Women's Hospital and Harvard Medical School

6. Center for Medical Ethics and Health Policy; Baylor College of Medicine

7. Mayo Clinic

8. University of Michigan Medical School

9. Data Coordinating Center; Boston University School of Public Health

10. University of Michigan School of Public Health

Funder

National Institutes of Health

National Human Genome Research Institute

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Health Policy

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/1468-0009.12262/fullpdf

Reference55 articles.

1. The current landscape for direct-to-consumer genetic testing: legal, ethical, and policy issues;Hogarth;Annu Rev Genomics Hum Genet,2008

2. Direct to consumer genetic testing: Avoiding a culture war;Evans;Genet Med,2009

3. Communicating genetic risk information for common disorders in the era of genomic medicine;Lautenbach;Annu Rev Genomics Hum Genet,2013

4. An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons;McGuire;JAMA,2008

5. Direct-to-consumer genetic testing: good, bad or benign;Caulfield;Clin Genet,2010

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2. A comparison of users' and non-users' perceptions of health and ancestry at-home DNA testing;Proceedings of the 2023 European Symposium on Usable Security;2023-10-16

3. Measuring high‐risk parents' opinions about direct‐to‐consumer genetic testing for adult‐onset inherited cancer syndromes in their adolescent and young adult children;Journal of Genetic Counseling;2023-02-07

4. Searching for secrets, searching for self: Childhood adversity, self‐concept clarity, and the motivation to uncover family secrets through direct‐to‐consumer genetic testing;Journal of Genetic Counseling;2023-02-03

5. Geriatricians’ Perspectives on the Multiple Dimensions of Utility of Genetic Testing for Alzheimer’s Disease: A Qualitative Study;Journal of Alzheimer's Disease;2022-11-22