Encouraging greater empowerment for adolescents in consent procedures in social science research and policy projects

Author:

Samdal Oddrun1ORCID,Budin‐Ljøsne Isabelle2ORCID,Haug Ellen1,Helland Trond1,Kjostarova‐Unkovska Lina3,Bouillon Claire4ORCID,Bröer Christian5,Corell Maria6,Cosma Alina7,Currie Dorothy8,Eriksson Charli9,Felder‐Puig Rosemarie10,Gaspar Tania11,Hagquist Curt12,Harbron Janetta13,Jåstad Atle14,Kelly Colette15,Knai Cecile16ORCID,Kleszczewska Dorota17ORCID,Kysnes Bjarte Birkeland1,Lien Nanna18ORCID,Luszczynska Aleksandra19,Moerman Gerben5,Moreno‐Maldonado Concepcion20,NicGabhainn Saoirse15,Pudule Iveta21,Rakic Jelena Gudelj22,Rito Ana23,Rønnestad Alfred Mestad24,Ulstein Madeleine24,Rutter Harry25,Klepp Knut‐Inge26ORCID

Affiliation:

1. Department of Health Promotion and Development University of Bergen Bergen Norway

2. Department of Food Safety, Division of Climate and Environmental Health Norwegian Institute of Public Health Oslo Norway

3. Center for Psychosocial & Crisis Action—Malinska Skopje Republic of Macedonia

4. EAT Oslo Norway

5. Department of Sociology University of Amsterdam Amsterdam The Netherlands

6. Unit for Mental Health, Children and Youth Public Health Agency of Sweden Stockholm Sweden

7. Department of Sociology Trinity College Dublin Dublin Ireland

8. School of Medicine St. Andrews University St. Andrews UK

9. Department of Learning, Informatics, Management and Ethics Karolinska Institute Solna Sweden

10. Department of Evidence and Quality Standards Austrian National Public Health Institute Vienna Austria

11. Psychology and health Sciences Department Lusofona University Lisbon Portugal

12. Department of Education and Special Education University of Gothenburg Gothenburg Sweden

13. Research Centre for Health Through Physical Activity, Lifestyle and Sport (HPALS), Department of Human Biology University of Cape Town Cape Town South Africa

14. Faculty of Psychology University of Bergen Bergen Norway

15. Health Promotion Research Centre University of Galway Galway Ireland

16. Faculty of Public Health and Policy London School of Hygiene & Tropical Medicine London UK

17. Institute of Mother and Child Foundation Warsaw Poland

18. Department of Nutrition University of Oslo Oslo Norway

19. Institute of Psychology SWPS University Wroclaw Poland

20. Department of Developmental and Educational Psychology University of Sevilla Seville Spain

21. Centre for Disease Prevention and Control Riga Latvia

22. Centre of Health Promotion Institute of Public Health of Serbia Beograd Serbia

23. Centre for Studies and Research in Social Dynamics and Health Lisbon Portugal

24. Press ‐ Redd Barna Ungdom Oslo Norway

25. Department of Social and Policy Sciences University of Bath Bath UK

26. Division of Mental and Physical Health Norwegian Institute of Public Health Oslo Norway

Abstract

SummaryThe United Nations Convention on the Rights of the Child emphasizes the importance of allowing children and adolescents to influence decisions that are important to them following their age and maturity. This paper explores the principles, practices, and implications around using parental versus child/adolescent consent when participating in social science research and policy development. Experiences from two studies are presented: The Confronting Obesity: Co‐creating policy with youth (CO‐CREATE) and the Health Behaviour in School‐aged Children (HBSC) study, a World Health Organization (WHO) Collaborative Cross‐National study. Although parental consent may be an important gatekeeper for protecting children and adolescents from potentially harmful research participation, it may also be considered an obstacle to the empowerment of children and adolescents in case they want to share their views and experiences directly. This paper argues that evaluation of possible harm should be left to ethics committees and that, if no harm related to the research participation processes is identified and the project has a clear perspective on collaborating with the target group, adolescents from the age of 12 years should be granted the legal capacity to give consent to participate in the research project. Collaboration with adolescents in the development of the research project is encouraged.

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Endocrinology, Diabetes and Metabolism

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