“Rare place where I feel normal”: Perceptions of a social support conference among parents of and people with Moebius syndrome-Reference-Cited by-同舟云学术

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“Rare place where I feel normal”: Perceptions of a social support conference among parents of and people with Moebius syndrome

Published:2017-05 Issue: Volume:64 Page:143-151
ISSN:0891-4222
Container-title:Research in Developmental Disabilities
language:en
Short-container-title:Research in Developmental Disabilities

Author:

Bogart Kathleen R.,Frandrup Erika,Locke Taylor,Thompson Hanna,Weber Natalie,Yates Jacqueline,Zike Nicholas,Hemmesch Amanda R.

Publisher

Elsevier BV

Subject

Clinical Psychology,Developmental and Educational Psychology

Reference41 articles.

1. Empowerment of patients: Lessons from the rare diseases community;Aymé;The Lancet,2008

2. Online social support: The interplay of social networks and computer-mediated communication;Bambina,2007

3. People are all about appearances: A focus group of teenagers with Moebius Syndrome;Bogart;Journal of Health Psychology,2015

4. Benefits of support conferences for parents of and people with Moebius syndrome;Bogart;Stigma and Health,2016

5. Living with Moebius syndrome: Adjustment, social competence, and satisfaction with life;Bogart;The Cleft Palate-Craniofacial Journal,2010

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