Cystic fibrosis prevalence in the United States and participation in the Cystic Fibrosis Foundation Patient Registry in 2020

Author:

Cromwell Elizabeth A.ORCID,Ostrenga Joshua S.,Todd Jonathan V.,Elbert Alexander,Brown A. WhitneyORCID,Faro AlbertORCID,Goss Christopher H.,Marshall Bruce C.

Funder

Cystic Fibrosis Foundation

Publisher

Elsevier BV

Subject

Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health

Reference30 articles.

1. Cystic fibrosis;Elborn;Lancet,2016

2. Ion channel modulators in cystic fibrosis;Gentzsch;Chest,2018

3. The Cystic Fibrosis Foundation Patient Registry. Design and methods of a national observational disease registry;Knapp,2016

4. Centers for Disease Control and Prevention National Center for Health Statistics. National Vital Statistics System, Mortality: Compressed Mortality File 1999-2020 on CDC WONDER Online Database, released 2021. Data are from the Multiple Cause of Death Files, 1999-2020, as compiled from data provided by the 57 vital statistics jurisdictions through the Vital Statistics Cooperative Program 2022.

5. Contemporary cystic fibrosis incidence rates in Canada and the United States;Stephenson;J Cyst Fibrosis,2022

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