Accuracy of patient-reported data for an online patient registry of autoimmune myasthenia gravis and Lambert-Eaton myasthenic syndrome-Reference-Cited by-同舟云学术

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Accuracy of patient-reported data for an online patient registry of autoimmune myasthenia gravis and Lambert-Eaton myasthenic syndrome

Published:2021-07 Issue:7 Volume:31 Page:622-632
ISSN:0960-8966
Container-title:Neuromuscular Disorders
language:en
Short-container-title:Neuromuscular Disorders

Author:

Ruiter Annabel M.,Strijbos Ellen,de Meel Robert H.P.,Lipka Alexander F.,Raadsheer Wouter F.,Tannemaat Martijn R.,Verschuuren Jan J.G.M.

Funder

Prinses Beatrix Spierfonds

Publisher

Elsevier BV

Subject

Genetics (clinical),Neurology (clinical),Neurology,Pediatrics, Perinatology and Child Health

Reference38 articles.

1. European database for myasthenia gravis: a model for an international disease registry;Fulvio;Neurology,2014

2. AHRQ methods for effective health care;Gliklich,2010

3. A first description of the Colombian national registry for rare diseases;Mateus;BMC Res Notes,2017

4. Antibody to acetylcholine receptor in myasthenia gravis. Prevalence, clinical correlates, and diagnostic value;Lindstrom;Neurology,1976

5. Clinical aspects of myasthenia explained;Verschuuren;Autoimmunity,2010

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1. Burden of disease in Lambert-Eaton myasthenic syndrome: taking the patient’s perspective;Journal of Neurology;2024-02-29

2. Increased Prevalence of Myasthenia Gravis in a Cohort of Patients with Inflammatory Bowel Disease;2023-10-12

3. Altered Cardiac Autonomic Regulation in Individuals with Myasthenia Gravis—A Systematic Review and Meta-Analysis;Neurology International;2023-09-08

4. A self-reported Brazilian registry of spinal muscular atrophy: data from natural history, genetic characteristics, and multidisciplinary care;2023-07-20

5. Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review;Health and Quality of Life Outcomes;2023-07-11

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