Attitude towards consent-free research use of personal medical data in the general German population

Author:

Richter GesineORCID,Trigui Nourane,Caliebe AmkeORCID,Krawczak MichaelORCID

Publisher

Elsevier BV

Reference34 articles.

1. European Parliament, Proposal for a Regulation of the European Parliament and of the Council on the European Health Data Space, COM/2022/197 final. https://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=CELEX:52022PC0197. Accessed 28 February 2024.

2. The European Parliament and of the Council of 27 April 2016 on the Protection of Natural Persons with Regard to the Processing of Personal Data and on the Free Movement of Such Data, and Repealing Directive 95/46/EC (General Data Protection Regulation),2016

3. Wissenschaftliches Gutachten „Datenspende“ - Bedarf für die Forschung, ethische Bewertung, rechtliche, informationstechnologische und organisatorische Rahmenbedingungen;Strech,2020

4. Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies;Aitken;BMC Med. Ethics,2016

5. Connected health user willingness to share personal health data: questionnaire study;Karampela;J. Med. Internet Res.,2019

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