The lived experience of mothers caring for school-age children with Pompe disease: A qualitative study
Author:
Funder
Taiwan Foundation for Rare Disorders
Publisher
Elsevier BV
Reference46 articles.
1. We don’t know what tomorrow will bring: Parents’ experiences of caring for a child with an undiagnosed genetic condition;Aldiss;Child: Care, Health and Development,2021
2. “What didn’t I do for this child?”: Parents’ retrospective construction of their child’s CP diagnostic process;Avieli;Journal of Developmental and Physical Disabilities,2017
3. Qualitative data collection tools : Design, development, and applications;Billups,2021
4. The caregiving experiences of fathers and mothers of children with rare diseases in Italy: Challenges and social support perceptions;Cardinali;Frontiers in Psychology,2019
5. The timely needs for infantile onset Pompe disease newborn screening—Practice in Taiwan;Chiang;International Journal of Neonatal Screening,2020
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