Parental Experience of Information and Education Processes Following Diagnosis of Their Infant With Cystic Fibrosis Via Newborn Screening

Author:

Jessup Melanie,Douglas Tonia,Priddis Lynn,Branch-Smith Cindy,Shields LindaORCID

Publisher

Elsevier BV

Subject

Pediatrics

Reference34 articles.

1. Cystic fibrosis in Australia;Australian Cystic Fibrosis Data Registry,2012

2. Chronic childhood illnesses: What aspects of caregiving do parents value?;Baine;Child: Care, Health and Development,1995

3. Cystic fibrosis newborn screening: Impact of early screening results on parenting stress;Baroni;Pediatric Nursing,1997

4. Factors that influence parents’ experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy;Collins;Patient Education and Counseling,2013

5. Enhancing self-efficacy for self-management in people with cystic fibrosis;Cummings;Studies in Health Technology and Information,2011

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