Improving community-based care for children with a rare condition: The example of long-segment congenital tracheal stenosis and perceptions of health professionals, parents and teachers

Author:

Wray JoORCID,Sugarman HannahORCID,Davis LauraORCID,Butler Colin,McIntyre Denise,Hewitt Richard

Publisher

Elsevier BV

Subject

Otorhinolaryngology,General Medicine,Pediatrics, Perinatology, and Child Health

Reference32 articles.

1. Rare diseases are a 'common' problem for clinicians;Elliott;Aust. Fam. Physician,2015

2. The need for worldwide policy and action plans for rare diseases;Forman;Acta Paediatr.,2012

3. Review of 11 national policies for rare diseases in the context of key patient needs;Dharssi;Orphanet J. Rare Dis.,2017

4. Rare disease: a national survey of paediatricians' experiences and needs;Zurynski;BMJ Paediatr Open,2017

5. Childhood long-term conditions in primary care: a qualitative study of practitioners' views;Willis;Br. J. Gen. Pract.,2015

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