Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Author:

Sanderson Saskia C.,Brothers Kyle B.,Mercaldo Nathaniel D.,Clayton Ellen Wright,Antommaria Armand H. Matheny,Aufox Sharon A.,Brilliant Murray H.,Campos Diego,Carrell David S.,Connolly John,Conway Pat,Fullerton Stephanie M.,Garrison Nanibaa’ A.,Horowitz Carol R.,Jarvik Gail P.,Kaufman David,Kitchner Terrie E.,Li Rongling,Ludman Evette J.,McCarty Catherine A.,McCormick Jennifer B.,McManus Valerie D.,Myers Melanie F.,Scrol Aaron,Williams Janet L.,Shrubsole Martha J.,Schildcrout Jonathan S.,Smith Maureen E.,Holm Ingrid A.

Funder

NHGRI

NIH Office of the Director

Publisher

Elsevier BV

Subject

Genetics (clinical),Genetics

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4. A new initiative on precision medicine;Collins;N. Engl. J. Med.,2015

5. Final NIH genomic data sharing policy;Fed. Regist.,2014

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