Beyond the Guidelines: How We Can Improve Healthcare for People With Tuberous Sclerosis Complex Around the World-Reference-Cited by-同舟云学术

Beyond the Guidelines: How We Can Improve Healthcare for People With Tuberous Sclerosis Complex Around the World

Published:2021-10 Issue: Volume:123 Page:77-84
ISSN:0887-8994
Container-title:Pediatric Neurology
language:en
Short-container-title:Pediatric Neurology

Author:

Stuart Clare^ORCID,Fladrowski Carla,Flinn Jennifer^ORCID,Öberg Berit,Peron Angela^ORCID,Rozenberg Micaela,Smith Catherine A.^ORCID

Publisher

Elsevier BV

Subject

Neurology (clinical),Developmental Neuroscience,Neurology,Pediatrics, Perinatology and Child Health

Reference29 articles.

1. Tuberous sclerosis complex diagnostic criteria update: recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference;Northrup;Pediatr Neurol,2013

2. Tuberous sclerosis complex surveillance and management: recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference;Krueger;Pediatr Neurol,2013

3. Tuberous sclerosis complex: concerns and needs of patients and parents from the transitional period to adulthood;Both;Epilepsy Behav,2018

4. Tuberous sclerosis complex: a survey of health care resource use and health burden;Rentz;Pediatr Neurol,2015

5. The economic burden of tuberous sclerosis complex in the UK: a retrospective cohort study in the clinical practice research datalink;Kingswood;J Med Econ,2016

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1. Das Bardet-Biedl-Syndrom;Monatsschrift Kinderheilkunde;2024-09-04

2. Widespread service fragmentation for patients and families with tuberous sclerosis complex (TSC) in the Republic of Ireland;Journal of Rare Diseases;2024-08-19

3. Patients’ and physicians’ awareness of clinical symptoms and disease severity in tuberous sclerosis complex;Orphanet Journal of Rare Diseases;2024-03-08

4. Neuropsychiatric manifestations of tuberous sclerosis in a young man in a psychiatric hospital in Botswana: a case report;Journal of International Medical Research;2024-01

5. Presentation and diagnosis of neonatal tuberous sclerosis complex: A case report and literature review;SAGE Open Medical Case Reports;2024-01