The White Coat Cape: An Ethical Analysis of Emerging Therapies to Treat Spinal Muscular Atrophy

Author:

Hartsock Jane A.

Publisher

Elsevier BV

Subject

Neurology (clinical),Pediatrics, Perinatology and Child Health

Reference17 articles.

1. The narrative of rescue in pediatric practice;Robinson,2002

2. Reflections on ethics and humanity in pediatric neurology: The value of recognizing ethical issues in common clinical practice;Ronen;Curr Neurol Neurosci Rep,2017

3. U.S. Food & Drug Administration. FDA approves new breakthrough therapy for cystic fibrosis,https://www.fda.gov/news-events/press-announcements/fda-approves-new-breakthrough-therapy-cystic-fibrosis#:~:text=Trikafta%20is%20the%20first%20approved,people%20in%20the%20United%20States; 2019 [Accessed October 10, 2022].

4. Ethical aspects in the care of a child with infantile spinal muscular atrophy (SMA);Chabrol;Arch Pediatr,2020

5. New ethical challenges in the management of rare pediatric diseases with innovative therapies;Dufosset;Arch Pediatr,2021

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