‘We're kind of like genetic nomads': Parents' experiences of biographical disruption and uncertainty following in/conclusive results from newborn cystic fibrosis screening

Author:

Boardman FelicityORCID,Clark CorinnaORCID

Publisher

Elsevier BV

Subject

History and Philosophy of Science,Health (social science)

Reference62 articles.

1. CFTR modulator therapies- effect on life expectancy in people with cystic fibrosis;Balfour-Lynn;Paediatr. Respir. Rev.,2020

2. Updated guidance on the management of children with cystic fibrosis transmembrane conductance regulator-related metabolic syndrome/cystic fibrosis screen positive, inconclusive diagnosis (CRMS/CFSPID);Barben;J. Cyst. Fibros.,2020

3. Couple-based expanded carrier screening provided by general practitioners to couples in the Dutch general population: psychological outcomes and reproductive intentions;Birnie;Genet. Med.,2021

4. What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions;Boardman;Eur. J. Human Genet.,2022

5. Using thematic analysis in psychology;Braun;Qual. Res. Psychol.,2006

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