Quality in Palliative Care from the Patient Perspective

Abstract

Patients with life-threatening illnesses who face death may suffer physically, psychosocially, and spiritually. The constant presence of illness and episodes of worsening illness is a persistent reminder of forthcoming death and can lead to feelings of fear. Existential issues may arise in addition to the physical suffering. Patients’ approaches to life, illness, and ideal quality of life were found to create a sphere of influence that shaped their palliative care experience. Especially at the end of life, patients’ preferences for help in living a meaningful life are connected to the aim of palliative care “to improve quality of life,” which includes the patients’ perspectives of what is considered meaningful and important. Patients’ perceptions of their care may be seen as an indicator of quality of care and is considered important for the development and improvement of palliative care.