There is more to a person than Motor Neurone Disease

Author:

Andrea Harris Denise

Abstract

When a person is living with motor neurone disease (MND), their temporality comes to the forefront. In the present, the lived-through past takes on new meaning, and the future is anticipated with angst. In contrast to many MND studies, where the focus is on the person in the present and the impact of MND on the body. This chapter explores a research journey and developed papers to propose a model of person-centred care in MND with a focus on individuality, which includes three major elements: 1. presuppositions, 2. acceptance, and 3. temporality.

Publisher

IntechOpen

Reference58 articles.

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