Ethical Questions Linked to Rare Diseases and Orphan Drugs – A Systematic Review

Author:

Kacetl JaroslavORCID,Marešová PetraORCID,Maskuriy Raihan,Selamat AliORCID

Publisher

Informa UK Limited

Subject

Public Health, Environmental and Occupational Health,Health Policy

Reference40 articles.

1. European Commision. Rare diseases | health - research and innovation - European commission. Published 2016. Available from: http://ec.europa.eu/research/health/index.cfm?pg=area&areaname=rare. Accessed August 25, 2018.

2. European Union of Private Hospitals. Access to orphan drugs: a comprehensive review of legislations, regulations and policies in 35 countries. Published 2016. Available from: http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0140002. Accessed August 25, 2018.

3. RARE Facts. Global genes. Available from: https://globalgenes.org/rare-facts/. Accessed July 20, 2020.

4. A fair share for the orphans: ethical guidelines for a fair distribution of resources within the bounds of the 10-year-old European Orphan Drug Regulation: Figure 1

5. Ethical imperatives of timely access to orphan drugs: is possible to reconcile economic incentives and patients’ health needs?

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