Clinic-based Assessment and Support for Family Caregivers of Patients With Cancer: Results of a Feasibility Study

Abstract

Background: Cancer caregiving is burdensome with unique needs, highlighting the importance of assessing caregivers’ distress. Caregivers often accompany patients to healthcare visits, presenting an opportunity to complete distress screening at patients’ point-of-care. Objective: To evaluate the feasibility of caregiver distress screening at the patients’ point-of-care and implementing a caregiver psychoeducational session. Methods: We approached caregivers in outpatient cancer clinic waiting rooms. Participants completed depression, burden, anxiety, quality of life, and stress measures. A psychoeducational session with a psychologist was offered to those meeting clinical cutoffs for depression and/or burden. Fifty caregivers completed 1+ measure; however, due to incomplete consent documentation, findings from 23 caregivers are reported. Results: A total of 22% of caregivers screened positive for depression, 30% for burden, and 70% for anxiety. More than half rated stress as moderate or higher. Mental wellbeing was slightly below that of the general population. More than 75% screened positive on 1+ distress measure. Of the 9 caregivers who met cutoffs for depression and/or burden, two (22%) accepted the psychoeducational session. Conclusion: Caregivers were moderately receptive to distress screening during patients’ visits, but were less receptive to engaging in the psychoeducational session due to time constraints and privacy concerns. Implications for Practice: Assessing caregivers’ distress can facilitate referrals for supportive services. Offering caregivers psychoeducational intervention outside of patient care may not be acceptable. Future research may evaluate the integration of routine caregiver screening within patient care to promote engagement with mental health services. What is Foundational: This research offers a unique method of assessing cance caregivers’ distress.