Family-Related Quality of Life and Burden in Caregivers of Patients with Chronic Skin Diseases

Author:

Elaidy Asmaa M.1,Elsheikh Asmaa Abdelghany1,Abdellateef Aisha Ghanem1,Elsadek Hala M.1

Affiliation:

1. Al-Azhar University Faculty of Medicine for Girls

Abstract

Abstract

Background: Skin diseases significantly impact the psychological well-being, social functioning, and daily activities of patients, which in turn can severely affect the quality of life of their family caregivers. Objectives: To assess burnout prevalence among caregivers of patients with chronic skin diseases (vitiligo, psoriasis, and alopecia areata) and its impact on their quality of life. Methods: A cross-sectional study using self-assessment questionnaires was conducted on 213 caregivers, utilizing the Zarit Burden Interview (ZBI) and the Family Dermatology Life Quality Index (FDLQI). The caregivers were equally divided among those caring for patients with psoriasis, alopecia areata, and vitiligo. Results: The study found that 29.5% of caregivers reported "not having enough time" due to caregiving, especially those caring for patients with psoriasis and vitiligo. Additionally, 37.1% of caregivers experienced stress balancing caregiving with other responsibilities, particularly those caring for patients with alopecia areata and psoriasis.We found that caregivers of psoriasis patients experienced the highest burden, followed by those of patients with alopecia areata and vitiligo. Positive correlation was found between ZBI scores and caregiver age, duration of patient care, FDLQI scores, and disease severity. Similarly, FDLQI scores correlated positively with caregiver age, time spent caregiving, duration, and disease severity. Conclusion: Caregivers of patients with chronic skin diseases face significant burdens that adversely affect their quality of life. It is crucial to spotlight these caregivers, as addressing their challenges can lead to better support systems and improved quality of life for both caregivers and patients.

Publisher

Springer Science and Business Media LLC

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