Evaluation of the effect of an online patient decision aid for female stress urinary incontinence: protocol for a stepped wedge study (the Decision study)

Author:

Gerritse Maria B.E.1,de Vries Marieke2,Heesakkers John P.F.A.3,Hout Joanna In 't1,Lagro-Janssen Antoine L.M.1,Vaart C. Huub van der4,Oom Daniella M.J.5,Schellart René P.6,Speksnijder Leonie7,Stegeman Marjan8,Verkleij Anneke C.9,Kluivers Kirsten B.1

Affiliation:

1. Radboud University Medical Center

2. Radboud University

3. Maastricht University Medical Center

4. University Medical Center Utrecht

5. Albert Schweitzer Hospital

6. Spaarne Gasthuis

7. Amphia Hospital

8. Elisabeth-Tweesteden Hospital

9. St. Antonius Hospital

Abstract

Abstract

Background Stress urinary incontinence (SUI) affects almost half of adult women and has a negative impact on quality of life. In the Netherlands, primary treatment options are pelvic floor muscle therapy (PFMT) and midurethral sling (MUS) surgery. This is a preference-based decision, in which the decision-making process may benefit from support from a patient decision aid (PDA). Use of a PDA overall reduces decisional conflict, the level of difficulty patients can experience when making a decision for a treatment or test. An online PDA for SUI treatment was developed to support the female SUI decision-making process. We hypothesize that use of the PDA will reduce decisional conflict. Methods The Decision study is a multicenter, prospective, stepped wedge study in which a group of patients who use the PDA is compared with controls. Eligible are women who have moderate to severe predominant SUI, did not give birth within the previous 6 months, do not wish to become pregnant anymore, do not have symptomatic vaginal prolapse, did not complete a course of PFMT within the last 6 months, have not undergone previous surgical SUI treatment and are able to use the internet in the Dutch language. Primary outcome is level of decisional conflict. Secondary outcomes are decisional regret, quality of life, urinary incontinence after treatment and the level of knowledge of the condition and treatment options. Questionnaires are filled in by patients after making the treatment decision and 6 months later. The study is powered for decisional conflict, with a 1:2 ratio of control-intervention group. A total of 366 patients is required, 122 in the control group and 244 in the intervention group. Discussion This study will evaluate the effect of the use of a PDA on the level of decisional conflict when making a decision for treatment in women with moderate to severe SUI. The outcomes will indicate whether implementation of the PDA in Dutch clinical practice will decrease decisional conflict. Trial registration number 2017-3540

Publisher

Springer Science and Business Media LLC

Reference25 articles.

1. Effect of severity of urinary incontinence on quality of life in women;Krhut J;Neurourol Urodyn,2018

2. Prevalence and trends in urinary incontinence among women in the United States, 2005–2018;Abufaraj M;Am J Obstet Gynecol,2021

3. Pelvic floor muscle training versus no treatment, or inactive control treatments, for urinary incontinence in women;Dumoulin C;Cochrane Database Syst Rev,2018

4. Mid-urethral sling operations for stress urinary incontinence in women;Ford AA;Cochrane Database Syst Rev,2017

5. Lifetime risk of stress urinary incontinence or pelvic organ prolapse surgery;Wu JM;Obstet Gynecol,2014

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