Cleft Lip and Palate Care in the United Kingdom—The Clinical Standards Advisory Group (CSAG) Study. Part 1: Background and Methodology

Author:

Sandy Jonathan R.1,Williams Alison C.1,Bearn David2,Mildinhall Sue3,Murphy Terrie2,Sell Debbie4,Murray John J.5,Shaw William C.2

Affiliation:

1. Division of Child Dental Health, University of Bristol Dental School, Bristol, England

2. Unit of Orthodontics, University Dental Hospital of Manchester, Manchester, England

3. Chelsea & Westminster Hospital, London, England

4. Department of Speech and Language Therapy at the Great Ormond Street Hospital for Children and Institute of Child Health, University of London, London, England

5. Department of Child Dental Health, The Dental School, Newcastle upon Tyne, England

Abstract

Objective To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study. Design Descriptive overview to introduce this series of papers. Setting Fifty National Health Service cleft teams. Patients/Participants Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. Main Outcome Measures Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction. Conclusions The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.

Publisher

SAGE Publications

Subject

Otorhinolaryngology,Oral Surgery

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