Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study

Author:

Meropol Neal J1,Daly Mary B2,Vig Hetal S2,Manion Frank J2,Manne Sharon L2,Mazar Carla2,Murphy Camara2,Solarino Nicholas2,Zubarev Vadim2

Affiliation:

1. University Hospitals Case Medical Center, Case Comprehensive Cancer Center, Case Western Reserve University, Cleveland, Ohio, USA

2. Fox Chase Cancer Center, Philadelphia, USA

Abstract

We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counselling sessions. Satisfaction with counselling was high in all domains studied, including technical (mean 4.3 on a 1–5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.

Publisher

SAGE Publications

Subject

Health Informatics

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