The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults

Author:

Engelen Marscha M.1ORCID,Franken Marie-Christine J. P.2ORCID,Stipdonk Lottie W.2ORCID,Horton Sarah E.34ORCID,Jackson Victoria E.56ORCID,Reilly Sheena37ORCID,Morgan Angela T.348ORCID,Fisher Simon E.19ORCID,van Dulmen Sandra101112ORCID,Eising Else1ORCID

Affiliation:

1. Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands

2. Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus University Medical Center, Rotterdam, the Netherlands

3. Speech and Language, Murdoch Children's Research Institute, Melbourne, Victoria, Australia

4. Department of Audiology and Speech Pathology, University of Melbourne, Parkville, Victoria, Australia

5. Population Health and Immunity Division, The Walter and Eliza Hall Institute of Medical Research, Parkville, Victoria, Australia

6. Department of Medical Biology, University of Melbourne, Parkville, Victoria, Australia

7. Menzies Health Institute Queensland, Griffith University, Southport, Australia

8. Royal Children's Hospital, Melbourne, Victoria, Australia

9. Donders Institute for Brain, Cognition and Behaviour, Radboud University, Nijmegen, the Netherlands

10. NIVEL (Netherlands Institute for Health Services Research), Utrecht, the Netherlands

11. Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands

12. Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden

Abstract

Purpose: Stuttering is a speech condition that can have a major impact on a person's quality of life. This descriptive study aimed to identify subgroups of people who stutter (PWS) based on stuttering burden and to investigate differences between these subgroups on psychosocial aspects of life. Method: The study included 618 adult participants who stutter. They completed a detailed survey examining stuttering symptomatology, impact of stuttering on anxiety, education and employment, experience of stuttering, and levels of depression, anxiety, and stress. A two-step cluster analytic procedure was performed to identify subgroups of PWS, based on self-report of stuttering frequency, severity, affect, and anxiety, four measures that together inform about stuttering burden. Results: We identified a high- ( n = 230) and a low-burden subgroup ( n = 372). The high-burden subgroup reported a significantly higher impact of stuttering on education and employment, and higher levels of general depression, anxiety, stress, and overall impact of stuttering. These participants also reported that they trialed more different stuttering therapies than those with lower burden. Conclusions: Our results emphasize the need to be attentive to the diverse experiences and needs of PWS, rather than treating them as a homogeneous group. Our findings also stress the importance of personalized therapeutic strategies for individuals with stuttering, considering all aspects that could influence their stuttering burden. People with high-burden stuttering might, for example, have a higher need for psychological therapy to reduce stuttering-related anxiety. People with less emotional reactions but severe speech distortions may also have a moderate to high burden, but they may have a higher need for speech techniques to communicate with more ease. Future research should give more insights into the therapeutic needs of people highly burdened by their stuttering. Supplemental Material: https://doi.org/10.23641/asha.25582980

Publisher

American Speech Language Hearing Association

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