Abstract
Abstract
There is a growing evidence base that identifying positive experiences in providing care can have a beneficial influence on carer wellbeing. However, there is a need to better understand what carers identify as the positive aspects of care-giving. The aim of this study is to explore the satisfying aspects of providing care to people with dementia. This study utilised Time 1 data from 1,277 carers of people in the mild-to-moderate stages of dementia taking part in the IDEAL (Improving the experience of Dementia and Enhancing Active Life) cohort study. Responses from 900 carers who answered the open-ended question ‘What is your greatest satisfaction in caring for your relative/friend?’ were analysed using thematic analysis. From the responses, 839 carers detailed satisfactions. Eight themes were identified, pertaining to three groups of beneficiaries: carers, people with dementia and the dyad. Perceived benefits for carers included identifying aspects of personal growth, seeing glimpses of the person, feeling they were making a difference and doing their duty. For the person with dementia, these included retaining independence, receiving good quality care and being happy. Dyadic benefits concerned the continuation of the relationship between carer and person with dementia. The findings highlight the need to take a dyadic approach when conceptualising positive experiences in providing care. Further research is needed to understand the role these positive experiences play and to develop interventions. Professionals working with carers should identify and validate these experiences.
Publisher
Cambridge University Press (CUP)
Subject
Public Health, Environmental and Occupational Health,Geriatrics and Gerontology,Arts and Humanities (miscellaneous),Social Psychology,Health (social science)
Reference60 articles.
1. Influence of positive aspects of dementia caregiving on caregivers’ well-being: a systematic review;Quinn;The Gerontologist,2019
2. Carers UK (2019) State of Caring 2019. Available at http://www.carersuk.org/images/News__campaigns/CUK_State_of_Caring_2019_Report.pdf.
3. Caregiving and Dementia: Predicting Negative and Positive Outcomes for Caregivers
4. Is the Glass Half Empty or Half Full?
5. The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review
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