Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information

Author:

Keogh Ruth H.ORCID,Bilton Diana,Cosgriff Rebecca,Kavanagh Dominic,Rayner Oliver,Sedgwick Philip M.

Funder

Medical Research Council

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

Reference22 articles.

1. Cystic fibrosis: current survival and population estimates to the year 2000;JS Elborn,1991

2. Cystic fibrosis mortality and survival in the UK: 1947–2003;J Dodge,2007

3. Validation and use of a parametric model for projecting cystic fibrosis survivorship beyond observed data: a birth cohort analysis;AD Jackson,2011

4. Cystic Fibrosis Trust. Cystic Fibrosis Registry Report 2016. https://www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry/reporting-and-resources.

5. An overview of international literature from cystic fibrosis registries: 1. Mortality and survival studies in cystic fibrosis;R Buzzetti,2009

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