From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association – A complex congenital malformation

Author:

Kassa Ann-MarieORCID,Engstrand Lilja Helene,Engvall Gunn

Funder

Gillbergska stiftelsen

H.K.H. Kronprinsessan Lovisas Förening för Barnasjukvård

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

Reference37 articles.

1. VACTERL/VATER Association;BD Solomon;Orphanet J Rare Dis,2011

2. Adults with VATER association: long-term prognosis;PG Wheeler;Am J Med Genet A,2005

3. Long-term outcomes of adults with features of VACTERL association;MS Raam;Eur J Med Genet,2011

4. Attention difficulties and physical dysfunction common in children with complex congenital malformations: a study of preschool children with VACTERL association;AM Kassa;Acta Paediatr,2018

5. The adaptation of parents to the birth of an infant with a congenital malformation: a hypothetical model;D Drotar;Pediatrics,1975

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