Key Implications of Data Sharing in Pediatric Genomics

Author:

Rahimzadeh Vasiliki1,Schickhardt Christoph2,Knoppers Bartha M.1,Sénécal Karine1,Vears Danya F.3,Fernandez Conrad V.4,Pfister Stefan5,Plon Sharon67,Terry Sharon8,Williams Janet9,Williams Marc S.9,Cornel Martina10,Friedman Jan M.1112

Affiliation:

1. Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada

2. Department of Medical Oncology, Programme for Ethics and Patient-Oriented Care in Oncology, National Center for Tumor Diseases, Heidelberg University Hospital, Heidelberg Germany

3. Centre for Biomedical Ethics and Law, Leuven, Belgium

4. Division of Hematology-Oncology, IWK HealthCentre, Halifax, Nova Scotia, Canada

5. Pediatric Neurooncology, Deutsches Krebsforschungszentrum, Heidelberg, Germany

6. Cancer Genetics and Genomics Program, Department of Pediatrics, Section of Hematology-Oncology, Baylor College of Medicine, Houston, Texas

7. Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas

8. Genetic Alliance, Washington, DC

9. Geisinger Health, Genomic Medicine Institute, Danville, Pennsylvania

10. Clinical Genetics/EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, the Netherlands

11. Department of Medical Genetics, University of British Columbia, Vancouver, British Columbia, Canada

12. Medical Genetics Research Unit, Children’s & Women’s Hospital, Vancouver, British Columbia, Canada

Publisher

American Medical Association (AMA)

Subject

Pediatrics, Perinatology and Child Health

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