Disease Registries and Outcomes Research in Children
Author:
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Pediatrics, Perinatology, and Child Health
Reference86 articles.
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4. Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases;Orphanet Journal of Rare Diseases;2018-06-28
5. Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry;Orphanet Journal of Rare Diseases;2017-05-02
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