Invisible: People with Disability and (In)equity in Precision Medicine Research

Author:

Sabatello Maya1ORCID,McDonald Katherine E.2ORCID

Affiliation:

1. Columbia University

2. Syracuse University

Funder

NHGRI/NIH’s Office of the Director

NICHD/NHGRI

Publisher

Informa UK Limited

Reference11 articles.

1. DeCormier Plosky W. M. J. Pluviose-Philip and B. E. Bierer. 2023. Accessibility by design in clinical research toolkit. Version 1.0. Cambridge: Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center). https://mrctcenter.org/diversity-in-clinical-research/tools/abd_toolkit/

2. Implementing legal capacity under Article 12 of the UN Convention on the Rights of Persons with Disabilities: The difficult road from guardianship to supported decision-making;Dinerstein R.;Human Rights Brief,2012

3. Precision Medicine for Whom? Public Health Outputs from “Genomics England” and “All of Us” to Make Up for Upstream and Downstream Exclusion

4. Precision medicine and the problem of structural injustice

5. Underrepresentation of blind and deaf participants in the All of Us Research Program

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