Understanding the data-sharing debate in the context of Aotearoa/New Zealand: a narrative review on the perspectives of funders, publishers/journals, researchers, participants and Māori collectives-Reference-Cited by-同舟云学术

Understanding the data-sharing debate in the context of Aotearoa/New Zealand: a narrative review on the perspectives of funders, publishers/journals, researchers, participants and Māori collectives

Published:2021-05-24 Issue:1 Volume:17 Page:1-23
ISSN:1177-083X
Container-title:Kōtuitui: New Zealand Journal of Social Sciences Online
language:en
Short-container-title:Kōtuitui: New Zealand Journal of Social Sciences Online

Author:

Reeves Jane¹,Treharne Gareth J.¹,Theodore (Ngāpuhi and Te Arawa) Reremoana²,Edwards (Taranaki Iwi, Ngāruahine, Tāngahoe, Pakakohi, Ngāti Will³,Ratima (Whakatōhea and Ngāti Awa) Mihi⁴,Poulton Richie⁵

Affiliation:

1. Department of Psychology, University of Otago, Dunedin, Aotearoa/New Zealand

2. National Centre for Lifecourse Research, University of Otago, Dunedin, Aotearoa/New Zealand

3. Taumata Associates, New Plymouth, Aotearoa/New Zealand

4. Te Pou Tiringa, New Plymouth, Aotearoa/New Zealand

5. Dunedin Multidisciplinary Health and Development Research Unit, Department of Psychology, University of Otago, Dunedin, Aotearoa/New Zealand

Funder

Office of the Privacy Commissioner Te Mana Matapono Matatapu

Health Research Council of New Zealand

Publisher

Informa UK Limited

Subject

General Social Sciences

Link

https://www.tandfonline.com/doi/pdf/10.1080/1177083X.2021.1922465

Reference96 articles.

1. Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

2. Data Disclosure and Data Sharing in Scientific Research

3. Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities

4. Feeling the future: Experimental evidence for anomalous retroactive influences on cognition and affect.

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