What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions-Reference-Cited by-同舟云学术

What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions

Published:2023-12-09 Issue: Volume: Page:1-8
ISSN:2167-8421
Container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
language:en
Short-container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Author:

Sommers-Spijkerman Marion¹²^ORCID,Stukker Anna¹,Kavanaugh Melinda S.³^ORCID,Ketelaar Marjolijn¹²^ORCID,Visser-Meily Johanna M. A.¹²^ORCID,Beelen Anita¹²^ORCID

Affiliation:

1. Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands

2. Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, and

3. Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, WI, USA

Funder

ALS Foundation Netherlands

Publisher

Informa UK Limited

Subject

Neurology (clinical),Neurology

Link

https://www.tandfonline.com/doi/pdf/10.1080/21678421.2023.2290738

Reference18 articles.

1. Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs

2. US data on children and youth caregivers in amyotrophic lateral sclerosis

3. The family experience of living with a person with amyotrophic lateral sclerosis: A qualitative study

4. Literature Review: Psychological Resilience Factors in People with Neurodegenerative Diseases

5. Children’s Self-Reports About Illness-Related Information and Family Communication When a Parent Has a Life-Threatening Illness