Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland

Author:

Leighton Danielle1234,Newton Judith123,Colville Shuna123,Bethell Andrew5,Craig Gillian6,Cunningham Laura47,Flett Moira8,Fraser Dianne9,Hatrick Janice4,Lennox Helen1011,Marshall Laura12,McAleer Dympna6,McEleney Alison313,Millar Kitty14,Silver Ann47,Stephenson Laura23,Stewart Susan9,Storey Dorothy15,Stott Gill313,Thornton Carol9,Webber Carolyn6,Gordon Harry123,Melchiorre Giulia123,Sherlock Laura12,Beswick Emily12,Buchanan David12,Abrahams Sharon123,Bateman Anthony123,Preston Jenny10,Duncan Callum9,Davenport Richard123,Gorrie George24,Morrison Ian6,Swingler Robert12,Chandran Siddharthan123,Pal Suvankar12312

Affiliation:

1. Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK,

2. Euan MacDonald Centre for Motor Neurone Disease Research, University of Edinburgh, Edinburgh, UK,

3. Department of Neurology, NHS Lothian, Western General Hospital, Edinburgh, UK,

4. Department of Neurology, NHS Greater Glasgow & Clyde, Glasgow, UK,

5. Department of Neurology, NHS Highland, Inverness, UK,

6. Department of Neurology, NHS Tayside, Dundee, UK,

7. Department of Neurology, NHS Lanarkshire, Glasgow, UK,

8. Department of Neurology, NHS Orkney, Kirkwall, UK,

9. Department of Neurology, NHS Grampian, Aberdeen, UK,

10. Department of Neurology, NHS Ayrshire & Arran, Ayr, UK,

11. Department of Neurology, NHS Dumfries & Galloway, Dumfries, UK,

12. Department of Neurology, NHS Forth Valley, Stirling, UK,

13. Department of Neurology, NHS Borders, Melrose, UK,

14. Department of Neurology, NHS Western Isles, Stornoway, UK, and

15. Department of Neurology, NHS Shetland, Lerwick, UK

Funder

Chief Scientist Office

MND Scotland

MND Association

Publisher

Informa UK Limited

Subject

Clinical Neurology,Neurology

Reference42 articles.

1. National Records of Scotland. Statistics and data: mid-year population estimates [Internet]. National Records of Scotland. 2017. [cited 2018 Feb 28]. Available at: https://www.nrscotland.gov.uk/statistics-and-data/statistics/statistics-by-theme/population/population-estimates/mid-year-population-estimates.

2. Incidence and lifetime risk of motor neuron disease in the United Kingdom: a population-based study

3. Genetic epidemiology of motor neuron disease-associated variants in the Scottish population

4. The Scottish Motor Neuron Disease Register: a prospective study of adult onset motor neuron disease in Scotland. Methodology, demography and clinical features of incident cases in 1989.

5. The incidence of motor nueron disease in Scotland

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