A qualitative study investigating the experiences of unmet social needs for children with cerebral palsy and their families: perspectives of parents and clinicians

Author:

Ostojic Katarina12ORCID,Karem Isra12ORCID,Paget Simon34ORCID,Mimmo Laurel56ORCID,Berg Alison4,Scott Timothy78ORCID,Burnett Heather9,McIntyre Sarah10ORCID,Smithers-Sheedy Hayley210ORCID,Azmatullah Sheikh11,Calderan Jack11,Mohamed Masyitah11,Olaso Anne11,van Hoek Debbie11,van Hoek Matthew11,Woodbury Mackenzie11,Wilkinson Alunya11,Henry Georgina10ORCID,Shiva Shaini12ORCID,Zwi Karen27ORCID,Lingam Raghu2ORCID,Dale Russell34ORCID,Eapen Valsamma12ORCID,Dee-Price Betty-Jean13ORCID,Strnadová Iva1415ORCID,Woolfenden Sue1216ORCID,

Affiliation:

1. Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia

2. Population Child Health Clinical Research Group, Faculty of Medicine and Health, University of New South Wales, Sydney, Australia

3. The Children’s Hospital at Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia

4. The Children’s Hospital at Westmead, Sydney Children’s Hospitals Network, Sydney, Australia

5. Nursing Research Unit, Sydney Children’s Hospitals Network, Sydney, Australia

6. Centre for Health Systems and Safety, Australian Institute of Health Innovation, Macquarie University, Sydney, Australia

7. Sydney Children’s Hospital Randwick, Sydney Children’s Hospitals Network, Sydney, Australia

8. Faculty of Medicine and Graduate School of Biomedical Engineering, University of New South Wales, Sydney, Australia

9. HNEkidsRehab, John Hunter Children’s Hospital, Newcastle, Australia

10. Cerebral Palsy Alliance Research Institute, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia

11. EPIC-CP Group, University of New South Wales/University of Sydney, Sydney, Australia

12. Academic Unit of Child Psychiatry, Discipline of Psychiatry and Mental Health, School of Clinical Medicine, University of New South Wales, Sydney, Australia

13. Southgate Institute for Health, Society and Equity, Flinders University, Adelaide, Australia

14. School of Education, Faculty of Arts, Design and Architecture, University of New South Wales Sydney, Sydney, Australia

15. Disability Innovation Institute, University of New South Wales Sydney, Sydney, Australia

16. Community Paediatrics, Sydney Local Health District, Sydney, Australia

Funder

Cerebral Palsy Alliance Research Foundation

Luminesce Alliance and Sydney Children’s Hospitals Foundation

Publisher

Informa UK Limited

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