From the bench to the bedside in the big data age: ethics and practices of consent and privacy for clinical genomics and personalized medicine-Reference-Cited by-同舟云学术

From the bench to the bedside in the big data age: ethics and practices of consent and privacy for clinical genomics and personalized medicine

Published:2015-08-01 Issue:3 Volume:17 Page:189-200
ISSN:1388-1957
Container-title:Ethics and Information Technology
language:en
Short-container-title:Ethics Inf Technol

Author:

Chow-White Peter A.,MacAulay Maggie,Charters Anita,Chow Paulina

Funder

Genome British Columbia (CA)

Publisher

Springer Science and Business Media LLC

Subject

Library and Information Sciences,Computer Science Applications

Link

http://link.springer.com/content/pdf/10.1007/s10676-015-9373-x.pdf

Reference59 articles.

1. 23andMe. (2007, November 19). 23andMe launches web-based service empowering individuals to access and understand their own genetic information. http://mediacenter.23andme.com/press-releases/23andme-launches-web-based-service-empowering-individuals-to-access-and-understand-their-own-genetic-information . Accessed September 10, 2014.

2. 23andMe. (2012, July 30). 23andMe takes first step toward FDA clearance. http://mediacenter.23andme.com/press-releases/23andme-takes-first-step-toward-fda-clearance/ . Accessed September 10, 2014.

3. 23andMe. (n.d.). Consent document. https://www.23andme.com/en-ca/about/consent/ . Accessed July 8, 2015.

4. 23andMe. (n.d.). Privacy statement—23andMe. https://www.23andme.com/legal/privacy/ . Accessed September 10, 2014.

5. ACMG Board of Directors. (2013). Points to consider for informed consent for genome/exome sequencing. Genetics in Medicine, 15, 748–749.

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