Ensuring the Success of Pediatric Cardiology Patients Through the Lifespan: Translating Current Transition Medicine Research into Programmatic Implementation-Reference-Cited by-同舟云学术

Ensuring the Success of Pediatric Cardiology Patients Through the Lifespan: Translating Current Transition Medicine Research into Programmatic Implementation

Published:2023-11-10 Issue:4 Volume:11 Page:193-203
ISSN:2167-4841
Container-title:Current Pediatrics Reports
language:en
Short-container-title:Curr Pediatr Rep

Author:

Lee Hannah Y.^ORCID,Lopez Keila N.

Publisher

Springer Science and Business Media LLC

Subject

Pediatrics, Perinatology and Child Health

Link

https://link.springer.com/content/pdf/10.1007/s40124-023-00307-1.pdf

Reference30 articles.

1. Gilboa SM, Devine OJ, Kucik JE, Oster ME, Riehle-Colarusso T, Nembhard WN, Xu P, Correa A, Jenkins K, Marelli AJ. Congenital heart defects in the United States: estimating the magnitude of the affected population in 2010. Circulation. 2016;134:101–9. Assessing population health metrics is critical to understanding the prevalence and incidence of patients that are affected by CHD.

2. Project Heart. (2019) CHD Facts and Stats. www.projectheart.org, retrieved on May 27, 2023. There were many good statistics and facts related to CHD that focused on the needs and barriers to care that CHD patient faces.

3. Anton C, Anton K, Butts R. Preparing for transition: the effects of a structured transition program on adolescent heart transplant patients’ adherence and transplant knowledge. Pediatr Transplant. 2019;23:e13544. Researchers at Texas Children’s Hospital examined the efficacy of their transition of program. They included the multidisciplinary team, session-specific information that they tailored to their patients and their educational needs.

4. van der Bom T, Zomer AC, Zwinderman AH, Meijboom FJ, Bouma BJ, Mulder BJ. The changing epidemiology of congenital heart disease. Nat Rev Cardiol. 2011;8:50–60. Focusing on how many pediatric CHD patients become adults was important to highlight. By recognizing the importance of continuity of care for the pediatric CHD once they reach adulthood, building TOCC can be justified.

5. Schwartz MC, Alegria J, Herlong R, Anderson W, Shah P, Karunanandaa A. Failure to identify a primary care provider is common amongst adults with congenital heart disease. Pediatrics. 2019;144:317–317 Patient outcomes were related to whether a patient had access to a primary care provider. The study concluded that a significant number of adult patients with CHD did not have a primary, thus leading to worse healthcare outcomes.