Author:
Rucinski Katherine,Knight Jesse,Willis Kalai,Wang Linwei,Rao Amrita,Roach Mary Anne,Phaswana-Mafuya Refilwe,Bao Le,Thiam Safiatou,Arimi Peter,Mishra Sharmistha,Baral Stefan
Abstract
Abstract
Purpose of Review
Big Data Science can be used to pragmatically guide the allocation of resources within the context of national HIV programs and inform priorities for intervention. In this review, we discuss the importance of grounding Big Data Science in the principles of equity and social justice to optimize the efficiency and effectiveness of the global HIV response.
Recent Findings
Social, ethical, and legal considerations of Big Data Science have been identified in the context of HIV research. However, efforts to mitigate these challenges have been limited. Consequences include disciplinary silos within the field of HIV, a lack of meaningful engagement and ownership with and by communities, and potential misinterpretation or misappropriation of analyses that could further exacerbate health inequities.
Summary
Big Data Science can support the HIV response by helping to identify gaps in previously undiscovered or understudied pathways to HIV acquisition and onward transmission, including the consequences for health outcomes and associated comorbidities. However, in the absence of a guiding framework for equity, alongside meaningful collaboration with communities through balanced partnerships, a reliance on big data could continue to reinforce inequities within and across marginalized populations.
Funder
National Institutes of Health
South African Medical Research Council
Canadian Institutes of Health Research
Canada Research Chairs
Publisher
Springer Science and Business Media LLC