Maternal Perceptions of Safeguards for Research Involving Children

Author:

Rostami MaryamORCID,Kim Jane Paik,Turner-Essel Laura,Roberts Laura Weiss

Funder

National Institute of Mental Health

Publisher

Springer Science and Business Media LLC

Subject

Life-span and Life-course Studies,Developmental and Educational Psychology

Reference60 articles.

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2. Aitken, M., de St. Jorre, J., Pagliari, C., Jepson, R., & Cunningham-Burley, S. (2016). Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies. BMC Medical Ethics, 17(1). https://doi.org/10.1186/s12910-016-0153-x.

3. Andrews, S. M., Raspa, M., Edwards, A., Moultrie, R., Turner-Brown, L., Wagner, L., Alvarez Rivas, A., Frisch, M. K., & Wheeler, A. C. (2020). “Just tell me what’s going on”: The views of parents of children with genetic conditions regarding the research use of their child’s electronic health record. Journal of the American Medical Informatics Association, 27(3), 429–436. https://doi.org/10.1093/jamia/ocz208.

4. Arevalo, M., Heredia, N. I., Krasny, S., Rangel, M. L., Gatus, L. A., McNeill, L. H., & Fernandez, M. E. (2016). Mexican-American perspectives on participation in clinical trials: a qualitative study. Contemporary Clinical Trials Communications, 4, 52–57. https://doi.org/10.1016/j.conctc.2016.06.009.

5. Ballard, H. O., Shook, L. A., Desai, N. S., & Anand, K. J. (2004). Neonatal research and the validity of informed consent obtained in the perinatal period. Journal of Perinatology, 24(7), 409–415. https://doi.org/10.1038/sj.jp.7211142.

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