Research biobank participants attitudes towards genetic exceptionalism and health record confidentiality

Author:

Dortenzio Victoria,Rhodes RosamondORCID,Merkelson Amanda,Naik HetanshiORCID

Publisher

Springer Science and Business Media LLC

Reference30 articles.

1. Belbin GM, Odgis J, Sorokin EP et al (2017) Genetic identification of a common collagen disease in puerto ricans via identity-by-descent mapping in a health system. Elife 12(6):e25060. https://doi.org/10.7554/eLife.25060

2. Billings PR, Kohn MA, de Cuevas M, Beckwith J, Alper JS, Natowicz MR (1992) Discrimination as a consequence of genetic testing. Am J Hum Genet 50(3):476–482

3. Biome Biobank Program: Icahn School of Medicine at Mount Sinai (n.d.) Retrieved April 9, 2022, from https://icahn.mssm.edu/research/ipm/programs/biome-biobank

4. Biome Biobank Program: Icahn School of Medicine at Mount Sinai (n.d.) Retrieved September 23, 2023, from https://icahn.mssm.edu/research/ipm/programs/biome-biobank/facts

5. Boardman F, Hale R (2018) Responsibility, identity, and genomic sequencing: A comparison of published recommendations and patient perspectives on accepting or declining incidental findings. Mol Genet Genomic Med 6(6):1079–1096. https://doi.org/10.1002/mgg3.485

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