Premises for Clinical Genetics Data Governance: Grappling with Diverse Value Logics
Author:
Publisher
Springer International Publishing
Link
http://link.springer.com/content/pdf/10.1007/978-3-319-33525-4_11
Reference51 articles.
1. Angrist, M., and R. Cook-Deegan. 2014. Distributing the future: The weak justifications for keeping human genomic databases secret and the challenges and opportunities in reverse engineering them. Applied & Translational Genomics 3: 124–127.
2. Baker, M. 2012. One-stop shop for disease genes. Nature 491: 171.
3. Baldwin, A.L., and R. Cook-Deegan. 2013. Constructing narratives of heroism and villainy: Case study of Myriad’s BRACAnalysis® compared to Genentech’s Herceptin®. Genome Medicine 5: 8.
4. Bergquist, M., J. Ljungberg, and B. Rolandsson. 2012. Justifying the value of open source. ECIS 2012 Proceedings. Paper 122.
5. Boyle, J. 2003. The second enclosure movement and the construction of the public domain. Law and Contemporary Problems 66: 33–74.
Cited by 4 articles. 订阅此论文施引文献 订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
1. Sustainable Data Governance: A Systematic Review and a Conceptual Framework;International Conference on Information Systems Development;2022-09-19
2. Big Data in Healthcare and the Life Sciences;Ethics and Integrity in Health and Life Sciences Research;2018-11-14
3. Enabling openness of valuable information resources: Curbing data subtractability and exclusion;Information Systems Journal;2018-03-12
4. The Ethics of Biomedical Big Data;Journal of Bioethical Inquiry;2017-10-07
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线，采集、加工和组织学术论文而形成的新型学术文献查询和分析系统，可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容，当前同舟云学术共收录了国内外主流学术期刊6万余种，收集的期刊论文及会议论文总量共计约1.5亿篇，并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询！咨询电话：010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3