Author:
García-Sancho Miguel,Lowe James
Abstract
AbstractThis chapter explores the proliferation of national human genome projects from the mid-1980s onwards. It argues that what is known today as the ‘Human Genome Project’ was an amalgamation of some of these efforts into the International Human Genome Sequencing Consortium (IHGSC). Different conceptions of the way human genomics should be conducted are explored, and the mechanisms through which these harnessed and excluded particular communities are explicated by comparing the national human genome projects in the USA and UK. We highlight the exceptionality of the IHGSC effort in its organisation, exclusivity, and orientation. The co-existence of other, more distributed models of human genomics—more aligned with the interests of medical geneticists—shows that the shift to concentrated and comprehensive whole genome efforts was not the only path open.
Publisher
Springer International Publishing
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